#WeekendCoffeeShare (May 31, 2025)

Hi everyone. Today I’m joining #WeekendCoffeeShare. I originally wanted to write another post first, but got distracted by a dozen other ideas. It’s 9PM here, so no more coffee for me. I need to drink plenty of water because I have some extra fluid in my right leg. Let’s have a glass of water and let’s chat. Or if you’d like coffee, fine by me too.

If we were having coffee, first I’d talk about the weather. For most of the week, it’s been quite rainy and too chilly for my liking, even though the daytime temperature was probably still higher than it should be. Today though, we have sunshine and a daytime high of 25°C.

If we were having coffee, then I’d share that I haven’t been as physically active as I’d have wanted to be. Like I said above, I have some unwanted fluid in my right leg. My leg also hurts from muscle knots. I had a dry needling treatment at the physical therapist’s on Tuesday and am having another one next Wednesday. I am not 100% sure it’s working, as on Thursday my pain was worse and besides, I don’t know which pain or limitation is from the muscle knots and which is from the fluid build-up.

Today was a good day in the walking department though. Next week is the institution’s four-day walking event. I’m going to take part in the 3km walk, but I’ll be allowed to sit in a wheelchair as needed (thankfully, this event isn’t as strict on walking as some others are). That way, I can take part in the festivities and enjoy the experience but don’t need to overexert myself.

If we were having coffee, then I’d tell you about my creative endeavors over the past week. I finished two unicorns for the home’s volunteers on Monday.

That day, I also found out that one of the student staff would be leaving. He didn’t work with me, but I know him because he used to be a student staff at the care facility in Raalte before coming here. Back then, we used to go on walks together, taking his camera with us and snapping pictures which my image description app could then describe. The app wasn’t nearly as advanced as it is now, so I might want to look up some of these pictures and run them through Be My Eyes now.

Anyway, I wanted to craft something for him but didn’t know what until my best friend asked me what his hobbies are. I initially said that I don’t know, then remembered our photographing adventures back in Raalte and said “photography”. My best friend immediately suggested I craft a camera. I had never done so, but my best friend gave me some suggestions. Here’s the result. Be My Eyes recognized it immediately and even said that the photo of the back I took might be of a miniature camera.


If we were having coffee, then I’d share that I cooked pasta for my fellow residents on Thursday. It wasn’t as good as it could’ve been, because the veg had been overcooked and generally speaking the meal was a bit bland. Better luck next time.

If we were having coffee, lastly I’d share that yesterday, on the student staff’s last shift, I played DJ again at the other side of the home. I initially played some Dutch-language songs that were apparently not well-known, but finally I chose “Oerend hard” by Normaal and that had my fellow residents loudly singing along.

Overall, this week was a good one except for the pain.

Devotion to Polymer Clay

Hi everyone. Today I’m joining John Holton’s Writer’s Workshop. I’m choosing to write on the prompt about devoting your life to art. What type of art would I devote my life to?

The question here is, are we to choose just one particular form of art that we’d devote our entire life to, or are we allowed to pick more than one form? After all, many art forms are interconnected and I would not enjoy one without the other.

For instance, I would probably not enjoy polymer clay as much if I didn’t take photos of my work and didn’t write about the craft on here. Also, if I make jewelry out of polymer clay or use polymer clay beads in a necklace or bracelet, that’s basically combining two crafts.

So, let me say I cannot choose just one art form, because, though my photographs aren’t all that artistic, I’d still have to choose between polymer clay and writing. I flat out refuse.

After all, though writing comes easiest to me, polymer clay is what brings me the most joy. I just love the fact that, even though I’m now totally blind, I still have some insight into colors. I also still, four years into the craft, love creating unicorns.

I made three unicorns in the past week. The latest, I haven’t baked yet because I just made it this evening. The other two I made late last week. One is probably going to be a gift to a staff who gave birth last week. I loved working with the two colors for the mane, tail and horn, but its horn is a little crooked.

The other one, which I myself like best, is for me. After all, you can never have too many unicorns.

A few years ago, I talked to my then staff about possibly creating unicorns to go into the care agency’s shop. That idea never materialized, but I’ve brought it up a few more times. I’d just love to have polymer clay as my “job”. Here, I chose anyway. And I also wrote on another prompt, because creating the unicorns is the main thing that made me smile recently.

Some Might Say It’s Wrong to Be Angry

Some might say it’s wrong to be angry. I was actually told when I was in fourth grade that I was “angry too quickly”. What my parents and the professionals meant is that my expression of my emotions, whether I was actually feeling angry or not, was wrong given the situation.

That’s not the same. An emotional expression isn’t the same as the emotion that someone is actually feeling.

Besides, I strongly disagree with the idea that emotions can be “right” or “wrong” even given the circumstances. I have always felt that the idea behind dialectical behavior therapy of deciphering whether an emotion you’re feeling is justified in that situation or not, and, if not, acting opposite, is incredibly invalidating.

It’s never wrong to feel angry. Or sad. Or happy for that matter. Yes, it can be wrong to express your emotions in a certain way, such as when you become disproportionately aggressive. Even then, your emotions aren’t wrong. And, at least in my case, the emotion I’m actually feeling isn’t usually anger.

Like, when, last week, I became physically aggressive towards a staff by trying to hit him, I wasn’t angry. I was panicking because the staff was restraining me for the relatively minor offense of trying to grab a small object that he thought I was going to throw to the ground. That assumption may’ve been correct, but that doesn’t mean my feeling of utter panic when grabbed by both arms, was wrong. For what it’s worth, I feel that restraining someone for fear of them damaging an easily replacable object, is out of proportion.

It’s easy to say that people are wrong for being angry, when in reality you can’t know what’s in their minds, so whether they actually feel anger at all. It’s also easy to think that a person trying to throw objects is disturbing the peace for the other people around so you, as a staff member, are justified to do whatever it takes to prevent them. However, just because it’s easy doesn’t mean it’s right.

I’m sharing this post with Missy’s MAD Challenge for this week. The prompt is the phrase “Some might say it’s wrong to…”.

Thankful Thursday (May 15, 2025): An Active and Creative Day

Hi everyone. Today is Thursday. I used to join in with (now angel) Brian’s Thankful Thursday occasionally a long time ago, but mostly pet bloggers joined in there. Recently, I discovered another Thankful Thursday blog hop. I’m joining in with both just because I can. 🙂

Today I had a really productive day in both the physical activity department and the creativity department.

In the morning, I went for a walk on institution grounds. Then, in the afternoon, my staff and I rode the side-by-side bike to the next town, where another staff lives who is currently on leave for family-related reasons. I went there to bring her a polymer cay “(op)kikker” (frog).

The staff invited us in for coffee, which was lovely. She really appreciated my little gift, which in turn made me grateful.

Later, I went for another walk on grounds and, in the evening, I crafted a unicorn out of polymer clay. My staff asked whether it was for yet another staff member, but I think I’m keeping this one myself. 😊

The staff, who had been doing all my support from 1PM on, also asked me whether I want to ride the side-by-side bike again tomorrow. Well, of course! I want to go to the market!

I am intensely grateful for a productive day. Here are some things I especially appreciated about today:


  • Coffee at the staff’s house.

  • Minimal pain even though I was quite physically active.

  • Being able to create again (I’ve been exceptionally crafty lately).

  • Excitement for tomorrow’s visit to the market.

  • And finally, the fact that I figured out how to use emojis on the computer! 🤣

#WeekendCoffeeShare (May 4, 2025)

Hi everyone. I’m once again joining #WeekendCoffeeShare on Sunday, as yesterday, I had a busy day and was too tired to write.

Today’s the day we commemorate Dutch people who died in World War II (and in every war, conflict and maybe they now count terrorist attacks too since). Only 5% of Dutch people currently were alive during our liberation on May 5, 1945. I never was all that much of a May 4 and 5 follower, but I have over the past few years learned to be more mindful of the freedom and rights I and those I love have, since they are more and more being threatened. For this reason, I think I’m going to do the two minutes of silence at 8PM this year. I hope I’ll have finished my post by then. I’ve just had dinner, so no coffee for me, but I’d love to offer you a drink.

If we were having coffee, first I’d talk about the weather. On Wednesday, we had our first day when, at the national weather institute in De Bilt, the temperature climbed to above 25°C. On Thursday, here it even got to 28°C. I read that the first day of temps above 25°C usually doesn’t happen until mid-May. I appreciated it though. Today, the daytime temp didn’t get above 13°C.

If we were having coffee, then I’d tell you I’ve done a lot of walking again, as well as riding the side-by-side bike. My May challenge on my Apple Watch is to double my movement goal twice. I already did it once so far, so that should be ridiculously easy.

If we were having coffee, then I’d share that one of the sick staff whom I’d made the polymer clay frog for last week, let me know via her colleague that she was really happy with it. I had originally asked another staff to pass the frog for the other sick staff on to her. Then, on Tuesday, that staff said it may be nice for the two of us to pop by the sick staff’s house on Wednesday so that I could personally give the frog to her. I did ask the staff whose idea this was to text her colleague to ask her permission for us to stop by, since some care workers with good reason don’t want clients to know where they live. Now I for one never even look up my staff online and would certainly not violate their living space. The sick staff gave her permission so one of the side-by-side bike rides was to there. The staff’s kids were home too and one of them asked me where I live. I, being awkward with young kids that I am, originally mentioned the institution town and then said I lived at [staff’s name]’s work, only to realize that [staff’s name] is “Mommy” to the kid.

If we were having coffee, I’d share that the other side-by-side bike ride was to a market once again. I resisted the urge to buy something, as I’d already been to the supermarket on Monday and I reasoned even just strolling the market is a nice experience. Besides, we did have lunch at a fish diner.

If we were having coffee, then I’d share I’m still struggling with the temp worker situation and how much energy goes into explaining everything to them. Sometimes, I think staff get me, while at other times, it seems as though they’re absolutely clueless.

If we were having coffee, lastly I’d tell you that, yesterday, I went to Nijmegen for a cerebral palsy meeting again. It wasn’t the nationwide CP day. That had been in early April but was held in a city that’s a two-hour journey from here, so I hadn’t gone there. Nijmegen is about a 45-minute drive in good traffic. This meeting lasted three hours total and there was no theme. Rather, we gathered in a restaurant and had lunch and some drinks and just chatted. I have met many of the participants a few times before, but there were a few newcomers too. With one of them, I chatted almost the entire time, because we had so much in common. She recommended a few resources to me too.

After the meeting, I had decided to go to my best friend’s parents’ house (ack, “in-laws” is a lot shorter 😉). My best friend picked me up in Nijmegen and drove us there. My best friend’s sister was there for a bit too with her one-year-old son. I really don’t do well with kids, although this one is a lot less loud than my nieces.

I didn’t get back to the institution until 8PM yesterday and went to bed shortly after 10PM. I’m honestly still quite tired.

#WeekendCoffeeShare (April 27, 2025)

Hi everyone. I really wanted to write a #WeekendCoffeeShare post yesterday, but was dealing with neck and shoulder pain and was quite tired, so I lay in bed by 9:30PM. I originally intended this to be a quick lie-down and planned to write my post after my music pillow had auto-disconnected after thirty minutes. Well, before those thirty minutes were up, I set the pillow to keep playing until I either manually turned it off or its battery was empty. Guess what? I know for a fact that the latter happened sometime during the night, because the pillow was no longer connected when I woke up at 8:30AM, but I swear I didn’t hear its pretty loud sound indicating it needs charging. I slept like a log!

Anyway, all this to say I’m doing my coffee share on Sunday evening. I’ve just had my last cup of coffee for the day, but I can serve you some soda or tea. Let’s have a drink and let’s catch up.

If we were having coffee, first as usual I’d talk about the weather. We’ve had some rain, some sunshine and some clouds. Today, the daytime temp was 19°C. We’re supposed to get almost summerlike temps of 23-24°C this coming week.

If we were having coffee, next I’d share that I’ve been crafting again. I made several polymer clay frogs for staff members who are recovering from surgery. The frog (Dutch: “kikker”) is sometimes used as a symbol for cheering someone up (“opkikker”). The first one took me over an hour to finish, but the second one was so much easier once I’d figured out how I wanted it. Here’s the second one.

If we were having coffee, then I’d tell you that I have a new assigned staff. One of my two assigned staff is on long-term leave for familial reasons and the other is a student. I had been a bit angry at the student for various reasons, among which her way of communicating the temp worker situation with me. The new one will be my assigned staff together with the student. I can get along with her pretty well.

If we were having coffee, finally I’d make use of the fact that I write my coffee share on Sunday to share that my spouse and I had an important discussion today after our outing to have lunch and shop. We have made up our minds that we’re getting divorced. We will continue to be best friends, but since there’s no sexual or romantic component to our relationship and we’re not living together nor intending on ever doing so again, it makes sense that we officially divorce. We have been having this on our minds for several months already, so the discussion, though hard, wasn’t altogether a surprise to me. We mostly need to work out how much my spouse owes me for my contribution to our mortgage, so that the house can be completely my best friend’s and no longer mine. I guess I will from now on refer to my spouse as my best friend to ease the transition for me.

It may seem like I’m not affected emotionally by this decision, but I am. I mean, I’ve mentioned a few times that my spouse and I will always be soulmates, but the fact is nothing is for certain. When we got married after all, it was to affirm our everlasting love to one another. Though our feelings for each other haven’t changed all that much since we first met in 2007, there’s this voice in me telling me this is the beginning of the end. I tell myself this is attachment anxiety talking. Whether it is or this fear is real, doesn’t really matter in the present moment though, as right now we’re still soulmates.

#WeekendCoffeeShare (April 19, 2025)

Hi everyone. I’m joining #WeekendCoffeeShare tonight. It’s almost 11PM here, so definitely no more coffee for me. If you’d like to grab a drink, feel free to and let’s chat.

If we were having coffee, first I’d talk about the weather. We finally got rain. Not as much as was originally thought and not nearly enough, but we got rain. The temperatures have also been lower, usually around 15°C. This is still warmer than normal, but I still yearn for 20°C.

If we were having coffee, then I’d tell you that, as a result of the rainy weather, I haven’t walked as much as I did in previous weeks. I still kept my perfect streak with respect to my movement goal on my Apple Watch, but didn’t meet my exercise goal everyday.

If we were having coffee, I’d share that I’ve finally been crafting again. I created a polymer clay bear holding a heart for my support coordinator, who is on maternity leave. Unfortunately, one of its ears fell off during baking, but thankfully I noticed it in time and was able to add a new ear.

I also made another attempt at creating a polymer clay trinket dish today, but failed once again.

If we were having coffee, I’d report that I had a meeting with the intellectual disability physician, who prescribes my psych meds, on Wednesday. The good news is that I’m allowed to further taper my antipsychotic. The bad news is no answers regarding my tremors. She thinks they may be related to my spastic cerebral palsy and this means that they can get worse when I’m stressed.

If we were having coffee, I’d tell you that I had a dietitian’s appt on Wednesday too. This went well. I’m staying in a sort of acceptable weight range and not having binge eating episodes or purging. My next appt will be in three months.

If we were having coffee, I’d moan about the temp worker situation once again. On Wednesday, when like I said I had two appointments, the staff wanted to orient a new “regular” temp worker to me. As soon as they told me, I told them that this wasn’t going to work out that day, but they kept telling me to see what’d come out of my doctor’s appt first and then we’d discuss it again. Well, no-one ever allowed for any discussion after the appt and, when the time came for the worker to be oriented, the staff doing the orienting kept pushing me in overt and covert ways to accept him. Like, the temp worker was constantly sneakily, without talking, being in my presence. This gave me a horribly unsafe feeling, because I, being blind, couldn’t be sure whether he was there or not.

The staff doing the orienting at one point seemed to show some understanding and told me she was going to talk it over with the other staff. She came back to tell me that it’d been agreed between my assigned staff, the support coordinator, behavior specialist and the team manager that, if I refused him now, I’d had my chance. She never told me who’d told her that when she was “talking it over”, so I assumed it was my assigned staff. I still refused the temp worker and to this day feel horrible about the whole situation. I mean, this whole agreement among the powers-that-be is showing that they believe I refuse staff for their one orientation moment just because I feel like it. Honestly, I still disagree with that whole thing about just one orientation moment and then they’re as regular as the regular staff who’ve worked here for years.

At one point, I went into the communal room and another staff, one of my “favorites”, was there. She asked me what was up and I explained that I had two appts that originally the staff didn’t think I could handle in one day and now they added this orientation thing to it too. The temp worker was present too and I told him it wasn’t that I didn’t like him, but he hadn’t even spoken a word to me during his previous shifts here and now he was creeping up on me. He apparently had been instructed to do so. The other staff understood and I actually talked a little to the temp worker.

Unfortunately, when I read my daily log notes for the past week today, I saw there wasn’t a single word about how I’d talked to him eventually. Neither was there anything about how I’d accepted the other temp worker (who’d had her orientation moment with me last week) for my activity on Tuesday, nor that I showed the new student staff my clay yesterday on his first shift here. This is relevant because it signifies that they’re still only reporting my challenging behavior and not the things I do accomplish in spite of the stress it gives me.

If we were having coffee, I would once again end on a positive note by sharing some small pleasures of the week. First was the BBQ on Thursday. It was good. Next up is a visit to the next town’s market yesterday. My spouse was a little surprised that I didn’t buy olives, as I usually buy those when going to the market. I did buy candy. I also went to the supermarket to buy some ingredients for my smoothies. We also went to that town’s coffee shop run by disabled people and had the most delicious caramel latte.

Speaking of which, I’d tell you that I’ve been having a new interest lately: coffee brewing. I’d really like to be able to create my own coffees. Still need to look into all the necessary supplies, but it should be fun.

#WeekendCoffeeShare (April 12, 2025)

Hi everyone. I’m joining #WeekendCoffeeShare today. It’s just past 4:30PM as I start writing my post, so I’m going to interrupt my writing for dinner. If you’d like a cup of coffee, you’re free to join me at 7PM, by which time I’ll probably have finished this post. Let’s have a drink and let’s catch up.

If we were having coffee, first I’d talk about the weather. It’s been sunny most of the week and we haven’t had rain in forever. Today, the temperature climbed to 22°C. This is my favorite type of weather, but I do realize that this high temps in April probably mean 40°C in July.

If we were having coffee, I’d tell you I once again managed to get in quite a lot of steps. On Monday, a staff and I went to the nearby lake, which I’d visited a few times with another staff before. While there, I did manage to take a few photos. My staff thought it’d be cool to take a photo of me at the bridge, but none of the photos she took were good enough. Here are a few photos that did turn out okay.



If we were having coffee, then I’d share that I’ve been taking some more photographs. On Sunday, I took some sunset shots. I really want to learn how to capture just the sunset rather than the buildings and trees too.


On Monday, I let my staff take my phone to the yard to snap a picture of an air balloon. I love how Be My Eyes describes the second photo with the bird on it.


If we were having coffee, next I’d tell you that I went out for lunch twice this week. On Wednesday, a staff and I went to Deventer to eat out at a restaurant staffed by people with developmental disabilities called Brownies ‘n’ Downies. There, I got the chicken burger with fries.

On Thursday, my mother-in-law came by for a visit. We drove to a pancake place a few towns away that has a play area for children too. Even though there weren’t many people in the restaurant, it was quite an overloading experience.

If we were having coffee, next I’d share that I’ve been hyperfixating on the idea of doing more cooking. I’ve been looking at smoothie recipes too, but I can’t seem to find cacao powder that isn’t super expensive anywhere in a brick-and-mortar supermarket.

If we were having coffee, I’d tell you that, this week, I’ve unfortunately still been struggling with temp workers being assigned to me. (Of course, my staff will say they’re “regular” temp workers.) Today, the support coordinator assigned me one of the temp workers for the entire morning under the guise of fewer switches. Well, it isn’t like he does this fewer switches thing when my trusted staff are available. IN the afternoon, the other temp worker had to have her one orientation moment with me. We went for a walk and then tried to play a game of dice, but she didn’t understand. The support coordinator told me that, if a staff doesn’t understand an activity, I can choose another activity which does suit them and another staff will explain the activity to them later. This frustrates me to no end.

If we were having coffee, I’d end on a positive note and share that, thankfully, the Center for Consultation and Expertise received our request to get involved. I’m now waiting for the behavior specialist to receive a call planning an orientation meeting. I really do hope I’ll be invited to that meeting.

March 2025 In My Kitchen

Hi everyone. I enjoyed the linky last month, so am participating in In My Kitchen again.

As regular readers of my blog will know, I don’t have my own kitchen because I live in an institution. We also usually get our dinners from a meal delivery service. Last month, I shared that I was hoping to do some more cooking in March. Guess what? I cooked dinner for myself and my fellow residents twice this past month.

First, on March 5, I cooked pasta with pesto, chicken and broccoli. My spouse joked after seeing the picture that the pine nuts were on sale. In reality, I hadn’t originally planned to sprinkle the pasta with pine nuts but my staff had loads of them, originally intended for her parrots, who don’t even really like them or that’s what she said.

A little over a week later, I cooked pasta again. This time, I included shrimp, lots of garlic, peppers, a few packages of mixed veg and, because according to me this was too little for ten people, a few bell peppers too. I needn’t have worried, because everyone had enough to eat and there were still a few servings left to go in the freezer.

I also made a few smoothies using my blender. Unfortunately, last week I found out that, somehow, the ring-shaped thingy that keeps the blades in place, had broken. I erroneously thought this meant the entire blender should be discarded. Yesterday, my spouse and I went to the electronics store and bought a new one, actually I believe it’s the same one I had. I also recently learned that I can actually make more smoothie with my blender than I used to think. After all, when you fill up the blender with fruit, veg or whatever you’re blending, you shouldn’t fill it up fully. Until recently, I however thought that this means you’re left with only, say, half the blender’s content of smoothie and that’s it. I never realized that you can add more food once the blender has finished blending some of its contents. Stupid, I know, but oh well.

In other kitchen-related news, my assigned staff has told me that she’ll add a weekly cooking activity into my day schedule. I don’t yet know when this is going to happen, but I did hear that my one-on-one support has been approved until the end of 2026 again. Yay!

#WeekendCoffeeShare (March 29, 2025)

Hi everyone on this last Saturday of March. I’m joining #WeekendCoffeeShare today. It’s nearly 8PM as I write this, so no more coffee for me. However, a fellow client’s parents brought us cheese, sausage and maybe other little snacks to go with our soft drinks this evening. I’ll have apple and peach-flavored Dubbelfrisss as usual. Let’s have a drink and let’s catch up.

If we were having coffee, first as usual I’d talk about the weather. It’s been mild most days with daytime temperatures around 15°C, though night-time temps have been around freezing. We had a little rain on Sunday I believe, but I think that was before I woke up. Honestly, I’m pretty sure nature could use some showers.

If we were having coffee, then I’d talk about my physical fitness routine. I am still going strong with my goal of a perfect month on my Apple Watch and, on Thursday, got in over 20K steps again.

If we were having coffee, then however I’d moan about my tremors. I’ve mentioned a couple of times that my right leg trembles horribly sometimes and, usually when it’s been happening, the rest of my body follows suit and starts twitching. Yesterday, it was really bad. My intellectual disability physician usually says it’s most likely influenced by stress, though both of us know that my medication (particularly my antipsychotic) could be causing it too.

With respect to my meds, I’ve often been reacting out of fear of becoming unmanageable and for this reason asking for a very slow taper. My physician has been constantly asking whether my life will become more difficult soon due to for instance more temp workers, because apparently that’d be a reason not to taper further for a while. Now I’ve decided that being manageable is not a reason to put my body through the effects of strong meds. Besides, yesterday I had an aggressive meltdown precisely because I couldn’t cope with the tremors anymore. Now thankfully on Monday my staff will contact the intellectual disability physician, my GP or both.

If we were having coffee, I’d also moan about my shoes. I’d worn one pair of orthopedic shoes for only a week last Thursday and they were already badly damaged. The physical therapist took a look at them and said she thought the orthopedic shoemaker might not have done the last repair properly. I’m not sure that’s the reason they get damaged so quickly. On Friday though, the physical therapist came by and took a video of my walking, which she is going to compare to a video she took about half a year ago. I’ll see her again next Friday and hope she’ll have some ideas.

If we were having coffee, I’d share that I’ve been having bad memories of my time in the mental hospital. Like I said above, the intellectual disability physician here constantly talks about the possibility of more temp workers as an excuse not to taper my medication. This was precisely why I was prescribed medication in the first place: I’d become severely irritable because of the large number of temp workers at the time and my psychologist was threatening me with seclusion if I continued to have meltdowns. Similarly, when on the locked ward, I was literally told I’d be locked up in the “quiet room” if I needed more care than they could provide. I realize rationally that this is institutional abuse, but I’ve internalized a lot of all the bullcrap institutions feed me.

If we were having coffee, I’d end on a somewhat positive note by sharing that the behavior specialist finally filled out the forms to get the Center for Consultation and Expertise involved on my case.