#WeekendCoffeeShare (July 31, 2021)

Posted on by Astrid

Hi all on this rainy Saturday. I’m joining #WeekendCoffeeShare again, although yet again it’s a bit late for coffee at 8:30PM. It’s odd in this respect that I start my coffee share paragraphs with “If we were having coffee…” even though I rarely offer you coffee. Oh well. Let’s have a drink anyway and let’s catch up.

If we were having coffee (or any other drink, but it feels off to have to repeat that every paragraph), I’d share that I haven’t been doing as well in the walking department this week as I did last week. I reached my goal of 10K steps only once this week and on a few other days, struggled to get beyond 5K steps. My foot hasn’t been cooperating and neither has the weather. It’s been quite rainy most days, although I managed to get a walk in between showers almost everyday.

If we were having coffee, I would share that I have the kindest yet weirdest mother-in-law. Earlier in the week, I asked her to be on the lookout for fine sanding paper to use to sand and buff my polymer clay ornaments. Not only did she drive by three different hardware stores in search for it, but she eventually ordered it online at Bol.com, even though I could as easily have ordered it there. I’m so grateful but I also feel a bit off now.

If we were having coffee, I would share that I have a slight cold, so I didn’t go to Lobith yet again. The self-administered antigen test for coronavirus I took was negative. Still, I want to avoid giving my husband whatever virus I do have, especially with him just having been vaccinated and this meaning he can’t be reliably tested for COVID.

If we were having coffee, I would tell you that I made the most delicious chicken, curry and fruit salad with my one-on-one staff yesterday. It was great having this for lunch.

If we were having coffee, I’d use the rest of this post to blather on about polymer clay, I guess. This evening, I have been practising making ornaments as independently as possible. I can roll out pretty even bases to cut shapes out of now, as well as cut out the shapes. I am however not able to remove the clay ornament from my cutting board workspace without damaging it yet. However, I’m confident that I’ll learn.

What have you been up to?

Online Window Shopping #WotW

Posted on by Astrid

Hi again everyone. Today I’m joining Word of the Week. The idea is to sum up your week in a word or phrase. Today’s phrase of the week is: online window shopping.

You see, like I mentioned last week, I had resolved not to spend any more unnecessary money until my benefits arrived on the 23rd (last Friday). I actually kept this promise to myself and didn’t buy anything, but over the week, I did have a lot of ideas of what I wanted to buy once my benefits arrived. Then when they did, it was almost the weekend, so I decided not to spend my money yet because my packages wouldn’t be sent out till after the weekend anyway.

Most of my online window shopping involved crafty stuff. Like I mentioned yesterday, I got it in my head that I wanted to try latch hooking again. Thankfully, my day activities staff remembered that a client at my pre-COVID group at the day center used to do this but no longer did. She went looking for the supplies and, on Thursday, I had a bit of canvas, a latch hook and a whole lot of yarn. The yarn was cut too short for me to work with right now, but I had some yarn and lace in my room too. Learning the craft again was hard, but I eventually managed to make some knots.

I also found a really cool polymer clay ornament while browsing some other blogs and this got me thinking of restarting polymer clay. Like jewelry-making and latch hooking, I did this in the past but threw my supplies away because I couldn’t manage the craft fully independently. Now that I let go of that ambition and actually have the one-on-one support I need, I am really thinking of restarting the craft. This blogger used an embossing folder and glitter glue to decorate her ornament, which had me looking at card making stores again too. I’m pretty sure that’s the only craft I’ll never pick up again.

I also did some online window shopping that didn’t involve crafts. Like, on Thursday I found out that NVDA, a free screen reader I occasionally use on my PC, now works with the Vocalizer voices I’m used to with JAWS and VoiceOver (my regular PC and iPhone screen readers). I immediately downloaded the add-on, only to realize that of course I’ll need a license. I mean, NVDA may be free, but the Vocalizer voices are not. A license costs €99. I’m still undecided as to whether I want to invest in it or wait for JAWS to fix the one major bug that leads me to using NVDA, that is, the inability to use the WordPress block editor with it.

Lastly, on Friday, I got talking to my assigned home staff about stim toys. Specifically, chewable jewelry. I initially thought that only U.S.-based sites sold them, but it turns out several of my fellow clients use them. I looked up chewable jewelry and found several online stores in the Netherlands that sell them. Of course, they’re marketing them mostly for children, so I may need one for heavier chewers. I haven’t yet decided on buying it though.

How would you sum up your week?

Word of the Week linky

#WeekendCoffeeShare (July 24, 2021)

Posted on by Astrid

Hi everyone on this late Saturday evening. I’m joining #WeekendCoffeeShare even though it’s rather late for coffee here at nearly 9PM. Besides, I had green tea this evening. I can of course still make you a Senseo, although with the amount of coffee stains in and on my coffee maker I wouldn’t recommend it. So I guess a glass of water or a soft drink should suffice. I hope that’s alright. Let’s have a drink and let’s catch up.

If we were having coffee, firstly I’d share that I’m so grateful the weather has been much milder over the past week than it was the week before. Of course, we here in Raalte weren’t personally affected by the floods either and damage control down in Limburg is still ongoing. However, the weather here has been truly beautiful.

If we were having coffee, I’d share that, thanks to the weather as well as my feet cooperating, I have been able to get in a lot of walking lately. I got in over 11K steps each day of the week so far.

I am still not sure I’ll sign up for Steptember, the annual fundraiser for the cerebral palsy charity this coming September. The aim is to raise funds while aiming for 10K steps each day, regardless of whether this is done while walking, wheeling, biking, etc. Last year, I did participate, but I didn’t really like the pressure I put onto myself by signing up.

If we were having coffee, I would tell you that I’ve been really crafty over the past week. I have been making some new bracelets. One of them, I sent to my mother. She received it in the post today and was happy with it.

I also picked up trying to do latch hooking again. This is a yarn craft for making rugs etc. I learned this at the blindness rehabilitation center back in 2005 and tried to pick it up again briefly in the psych hospital, but was too easily frustrated for it back then. So far, I am not 100% sure I understand the technique again yet, but I’m confident that ultimately I’ll learn.

If we were having coffee, I’d share that I’m truly grateful for all the comments on my blog over the past few days. It makes me feel so happy to see that others read and appreciate my writing.

If we were having coffee, lastly I would announce that tomorrow is my third blogiversary! That is, it’s the third anniversary of my having (re)started this blog. I say “re” because I used this domain (or the WordPress.com subdomain at least) back in 2011 too. I have been on WordPress for over fourteen years and have had an online diary ever since 2002. I still keep learning and growing everyday. I am so, so grateful that, contrary to what some “influencers” say, blogging isn’t dead at all. I hope it never dies.

How have you been?

Unsettling Dream

Posted on by Astrid

Last Monday, I had an appointment with my nurse practitioner. First, I said that I was doing pretty well. This is a big step for me, as I’m not normally accustomed to saying I’m well. He started talking about decreasing the frequency of our appointments and possibly even working towards ending my treatment. While I was able to say that this is far too early for me, at least talking about termination, it all still unsettled me.

I mean, I’ve had my latest med tweak only two weeks ago. Two weeks prior to that, I was in a major crisis.

Honestly, looking at it this way, it seems nuts that he even mentioned terminating. This honestly confirms my fear that if I’m doing well, it automatically means I’ll lose my help. Thankfully, I was able to keep myself from panicking and calmly told him that I’m not ready to stop my treatment now or in the foreseeable future. After all, I still want to lower my Abilify dose and that’d take a psychiatric provider to supervise too.

We eventually agreed on a re-evaluation in December or January and to keep the frequency of my appointments as it is now until then at least. My nurse practitioner already seemed to make it pretty clear he really wants to decrease our appointments by then, but oh well.

The following night, I had my first trauma-related nightmare since going on the topiramate. It wasn’t a direct reliving of a traumatic event, thank goodness. However, my dreams rarely are.

In my dream, I was standing on top of the Erasmus building of Radboud University in Nijmegen, a 20-storey building. Someone I didn’t recognize but who sounded strangely soothing was holding me in a comforting embrace. Then, she said: “Sit down please. I can’t hold you any longer.” Just as I was going to sit down, my right leg slipped and I was standing there with my right foot hanging in mid air. Then I awoke. I immediately realized the symbolism in this dream.

I had the sensibility to press the call button and the night shift came by. Thankfully, she didn’t just soothe me, but encouraged me to actually tell her my dream, which I did. She then confirmed that I’m not in Nijmegen now, but in Raalte.

Needless to say, I’m going to make sure at my next appt, my nurse practitioner understands that just because I’m doing well for a few weeks, doesn’t mean I’m ready to quit my treatment.

#WeekendCoffeeShare (July 17, 2021)

Posted on by Astrid

Hi all, I’m joining #WeekendCoffeeShare, even though I already had my evening coffee and my soft drink for today. I think I’m going to just have some water with my late evening medications soon and that’s it for today. However, like I’ve said before, I can always make you a Senseo coffee. I’m afraid we no longer have green tea, so if you’d like tea, you’ll have to pick regular or some variety of fruit-flavored tea. Anyway, let’s have a drink of medicine water for me and coffee, tea or a soft drink for you and let’s catch up.

If we were having coffee, I’d share that I’m still relatively stable mentally. I have been slightly in flight mode, ie. distracting myself from my feelings by keeping busy. That’s okay though if it doesn’t last too long. Yesterday, it had maybe lasted too long and I had a meltdown over a necklace I’d made that snapped just as I’d finished it. I was able to get myself back together though.

If we were having coffee, I’d tell you about the shopping spree I went on at Action, a budget store. I bought another hair clip and some scrunchies, socks, a coat hanger and some other things. In total, I spent less than €10. I also went to HEMA, another large store, because I wanted silicone straws. You know how plastic straws have been banned in the EU? Well, I have never tried drinking from a paper straw, but I’m not intending on trying either. The straws were quite expensive compared to all that I’d bought at Action: €4 for four straws and a cleaner brush.

If we were having coffee, I’d also share I’ve resolved not to make any more unnecessary purchases until my benefits arrive on the 23rd. You see, the €10 at Action and €4 at HEMA were the least of my expenses recently and, though I’m by no means broke, I do want to make sure I stay financially secure.

If we were having coffee, I’d proudly tell you that I made a lip balm for a fellow client. He has Down Syndrome and this apparently goes with chronically dry lips. Last week, I had told one of my staff that I had been making lip balms for myself but would be throwing them out in a while, as they won’t last me till winter and I don’t tend to use lip balms in summertime. This staff suggested I give the lip balms to said client, but I had touched them with my fingers. For this reason, I decided to make a new batch of lip balm while making sure to work hygienically. Thankfully, we have a huge stash of gloves at the facility.

The lip balm still was a bit of an experiment, since I used coconut oil this time rather than sweet almond oil. Other than that, I used the same ingredients I had for my own product: beeswax, cocoa butter and a drop of flavor oil.

As it turned out, the man was really pleased with it. The staff tell me he keeps asking for “his” lip balm rather than the standard store-bought one that he used to wear. I’m pretty sure this little pot will last him several months, but I’m already thinking of buying lip balm tubes so that the lip balm will be easier to apply.

If we were having coffee, I’d share how grateful I am not to live in an area of the country affected by the flood of the past few days. In the southern province of Limburg, as well as in Belgium and western Germany, heavy rainfall led to a lot of flooding. I don’t know the details, but it does kind of worry me. I mean, I was taught in school that climate is something that’s relatively stable over a period of about 30 years. Over the past five years or so, I seem to have heard of more and more extreme weather though.

If we were having coffee, lastly I’d share that the rise in COVID cases also really worries me. Today, there were over 11,000 new cases in a single day. People try to reassure me that they’re all partying youth, but I’m so worried about who else those partying youth might’ve infected. I am not really worried for my own health, as neither a partying youth nor a vulnerable elderly person. I am, however, worried for another lockdown.

Sorry for ending this post on a negative note. I really hope you all have been doing well.

#WeekendCoffeeShare (July 9, 2021)

Posted on by Astrid

Hi everyone on this partly sunny and warm Friday evening. I’m joining #WeekendCoffeeShare. I’m afraid it isn’t time for our evening coffee for another hour yet, but I can offer you a glass of water or of course make you a Senseo coffee in my own coffee maker. Let’s have a drink and let’s catch up.

If we were having coffee, firstly I’d share about the topiramate. Yay, I finally started it and yay for no side effects! That being said, I’m not noticing any positive effects either as of yet and my nurse practitioner said it’ll be four to six weeks before we’ll increase my dosage. That disappointed me a bit, given that the max dosage for PTSD symptoms is six times what I take now, so it’ll take at least six months to get to that level and then if we decide this medication isn’t for me after all, six more months to get back off. Maybe I’m wrong here, since I’ve never had a medication not work on me at all before. I’ll discuss all this with my nurse practitioner when I next see him. Of course, here’s hoping the medication will start working in a few weeks.

Next, if we were having coffee, I’d share that I’ve experienced an increase in motivation lately. This has been going on for a few weeks already, but I’m noticing it might stick around longer now. Usually, it only lasts for a week or so and then diminishes again.

I have not been as crafty this past week as I was last week, but still I’ve not been disappointed with my level of activity.

If we were having coffee, I’d tell you that I talked with the care facility’s behavior specialist yesterday. We decided to let the moving care homes issue rest for a bit, but get back to it in about two months’ time. I really do hope we can work on making my life in my current care facility better, as she’s right that every place has its positive and negative sides.

If we were having coffee, I’d moan about the rapid increase in COVID cases here in the Netherlands. We’re due to get another press conference from the prime minister at 7PM. I’m not expecting any measures that will affect me directly, but still, it sucks.

If we were having coffee, I would share that I’ve been spending quite a bit of money on my hobbies lately. I ordered several new essential oils, including the Roman chamomile I mentioned on Wednesday, as well as a full liter bottle of sweet almond oil. I also ordered a kitchen scale. Not a talking one, as they’re too expensive for my liking. I’m hoping all my supplies will arrive either tomorrow or next Monday.

If we were having coffee, lastly I’d tell you I’m loving looking at sites for bath and body recipes. I already created a pink grapefruit and lemon massage oil. Since both essential oils are phototoxic, I took extra care to dilute them properly and so far, so good. I used the oil on my hands yesterday and am absolutely fine despite the sunshine now.

How have you been?

Currently (July 2021)

Posted on by Astrid

I usually don’t participate in the Currently linkup, in part because the prompts don’t always inspire me and in part because the posting day coincides with the Insecure Writer’s Support Group. I still follow Anne’s blog in my feed reader though and today, I decided to check out her post. It’s quite an easy one this month, so here goes.

Eating

Way too much. When I would initially be prescribed my currently latest medication, topiramate, the psychiatrist told me that it may cause me a decreased appetite. So far, not so. It’s not a problem though, since, even though I’m overweight, my weight is stable.

Today, my day activities staff took me to the local marketplace and we bought fish and chicken wings for lunch and I bought a giant waffle called “stroopwafel”.

Now in case you’re thinking I’m chronically overeating, I normally eat a pretty balanced diet.

Feeling

Okay’ish. I’ve had a few rough weeks, as regular readers of my blog will know. However, I still find moments of joy, particularly when I’m crafting.

Going

To Lobith. For those visiting from the linkup, I live in a care facility in Raalte, Netherlands. My husband lives in Lobith, about a ninety-minute drive away. I normally go to Lobith about twice a month, but I went there both last weekend and the weekend before for my birthday celebrations.

Ordering

Most recently, some jewelry-making supplies. However, I already have my eyes on a number of relatively affordable essential oils too. I mean, oils that would cost over €50 for a 10ml bottle normally but I can get for €20 at some stores apparently. Think Roman chamomile. I know, it’s probably not the best quality, but my wallet has a will of its own. I need to restock my sweet almond oil too, as I just used most of what I had left for a massage oil yesterday.

Realizing

That I may need to stop evaluating my life and start living. This is sort of the take-home message I got from my psychiatric nurse practitioner at my last appointment on Monday. I was talking about possibly wanting to find myself another care home and compulsively looking for it. I mean, checking out care agencies’ websites on a daily basis for suitable homes. This really isn’t helping, since even if I need or want to leave my current placement, I’ll need guidance on finding myself another place to live. As my nurse practitioner said, I’m evaluating my life each day again rather than seeing each day as just the day it is.

Unfortunately, part of me is feeling as though his message means I need to accept a rather difficult living situation just because it isn’t time to evaluate yet. I can see his point about not checking out care agency websites daily, but the compulsion is also hard to break, as this is what I’ve been doing pretty much my entire adult life. For those not aware: I lived in one temporary placement or another from age nineteen until I moved to the current care facility in 2019. It’s only natural that I cannot believe that this is where I can stay.

What’s up with you?

Jewelry-Making #WotW

Posted on by Astrid

Hi everyone. Today I’m once again joining Word of the Week. I already shared some of my experiences from the week with you all on Friday. Today, I want to focus on an important positive aspect of the week: jewelry-making. Like I said last week, I got a lot of supplies from my parents for my birthday. I also bought some new supplies later this week.

The actual jewelry-making process is still sometimes hard for me due to my being blind and having mild cerebral palsy. I am making progress though in figuring out what works for me.

First, on Wednesday, I made a bracelet for my day activities staff. She had her birthday that day so was off, but my assigned support staff from the home came to sub. I did all the threading by myself and tried to tie the knot too.

On Thursday and Friday, I was even busier making jewelry. I made my first necklace in a long time. It didn’t turn out as good as I’d hoped and I don’t have a photo, but it is nice enough.

I also made a football bracelet for a fellow client. I originally wanted to make something in the colors of his favorite club, but I didn’t have red and white beads. Instead, I chose green for the grass and added a football charm. This client has his birthday next month I think, so I already decided to make him something in the club colors then.

Lastly, I enthusiastically decided to make a necklace for my niece. She is 21-months-old and I had no idea what the appropriate age for wearing jewelry is. I also added acrylic charms that I later realized she might pull off and put into her mouth.

I texted my sister and she said two to three years is the recommended age for necklaces. I thought of keeping the necklace for my niece’s birthday, but eventually decided to give it anyway when my sister and her family visited me yesterday. I’m confident my sister will be able to keep it safe until my niece is ready for it.

How would you sum up your week?

Word of the Week linky

#WeekendCoffeeShare (July 2, 2021)

Posted on by Astrid

Hi everyone! Can you believe the first half of 2021 is over already? I certainly can’t. Today, I’m joining #WeekendCoffeeShare. I just had my afternoon soft drink. If you want one too, I bet there’s still some left in the fridge. I can also make you a Senseo coffee if you want it. Let’s have a drink and let’s catch up.

If we were having coffee, first I’d talk a little about the weather. It’s okay. Most of the past week, it’s been raining, but I still got time to go outside inbetween rainfalls. It was a bit chilly for summer early in the week. Today and over the weekend, temperatures are supposed to rise to above 20°C.

If we were having coffee, I’d also tell you that most of the pandemic restrictions were lifted last week. They however had only been lifted a few days when news got out about the delta variant of the coronavirus soon becoming dominant. Thankfully, the Netherlands has quite a high vaccination rate, so I have my hopes up we won’t enter a full lockdown come September. After all, my husband and I celebrate our tenth wedding anniversary on September 19 and we really want to finally be able to do something fun.

If we were having coffee, I would share that this week was a truly mixed bag mental health-wise. I did enjoy some activities, like jewelry-making. Last week was my 35th birthday and I got a bunch of supplies as a present. When being engaged in creative activities, I do genuinely feel some level of contentment, if not happiness.

However, there have also been times when I felt incredibly left out and hopeless. Like I said two weeks ago, the manager indicated that I cannot get more support than I’m getting now. Sometimes, I’m okay with this, but at other times, it really frustrates me.

If we were having coffee, I would share that I’ll finally start my topiramate this coming Sunday. The longer it takes, the less hopeful I am that it will actually help. We’ll see though.

If we were having coffee, I’d tell you that, on Wednesday, some type of staff support person came to observe and help the staff with some situations with other clients and with me. She offered some ideas for easing transitions for me. When I’m doing okay or sort of okay, they help, but when I’m very distressed, they don’t. I’m still unsure as to how I can ease the many transitions I face during the day.

If we were having coffee, I’d update you all about my situation with the possible UTI I talked about two weeks ago. Well, it isn’t a UTI. What it is, no-one seems to know or care about. I was told to take naproxen and paracetamol and, when this week I reported that they helped some, was just told to continue taking them for another month. A month! I mean, seriously?! I feel quite frustrated about this.

If we were having coffee, lastly I’d tell you that my sister and her family are visiting me and my husband in Lobith tomorrow. My husband gave me the choice between taking a ParaTransit taxi and him picking me up at 10AM. Since my sister won’t visit till 3PM, I decided to take the taxi. I still have my entire kilometer allowance, since I haven’t felt comfortable yet using the taxi due to COVID-19. My taxi should arrive here in Raalte by 12:30PM. It’s normally a little under a ninety-minute drive to Lobith, but the taxi service might be late and/or combine my ride with someone else’s. However, if I schedule my ride earlier, I won’t be able to have lunch. Fingers crossed the taxi won’t be late.

How have you been?

Birthday #WotW

Posted on by Astrid

Hi all on this beautiful Sunday! It’s already 8:30PM as I start typing my post. It’s my 35th birthday today and I spent most of the week stressing about it and the weekend celebrating it. For this reason, I’m choosing “Birthday” as my word of the week, even though the week is practically over already.

Early in the week, I talked over my birthday with my husband. I had already invited my parents to come over to Lobith today. They hadn’t seen the house since we’d bought it, or the inside of it at all for that matter. My parents need to drive over two hours from their home to Lobith and I’d asked them to drop me off at the care facility in Raalte on their way back. For this reason, I pretty much felt obligated to invite them over for dinner in Lobith. However, this also stressed me out, as it would mean I wouldn’t be in Raalte till like 8PM, by which time my one-on-one would’ve left.

My husband told me I could text them with a time proposal for them to arrive, like early afternoon. That way, they still had some hours to be with us and could still be dropping me off in Raalte and arrive home at a reasonable time. My father doesn’t text and my mother doesn’t drive, so I texted my mother to ask her if this was okay with both of them. It was.

Yesterday, my mother-in-law picked me up in Raalte and we drove to my in-laws’ house. It was good to be there. I in fact had only been there once since the pandemic started. Before then, and especially before I went into long-term care, I’d be at my in-laws’ at least once a week on average. I always loved walking their dog, a black lab called Bloke. My mother-in-law and I walked him again yesterday.

For dinner, we indeed had lasagne and indeed without celery. It was great! I also had a Magnum Billionaire ice cream for dessert.

I also got lovely presents. One of my sisters-in-law had been sent shopping for the largest Rituals gift box she could find. I think it’s amazing!

Today, like I said, my parents visited. I don’t have the greatest relationship with my parents. Like usual, my father kept infodumping on his interests, which he was able to relate to our house in Lobith, since he practically renovated my parents’ house on his own. I could hardly get a word in, but my husband seemed interested. I made some smalltalk with my mother.

The presents I got from my parents, were great though. I had asked them for a surprise box from my favorite beading shop, which happens to be local to them. Aside from that package, I also got another box of jewelry-making supplies they’d found at a thrift store, a turtoise soft toy and fresh cherries and strawberries.

When I returned to the care facility at about 6:15PM, I had dinner: noodles another client and staff had cooked this morning. It was good.

Overall, the day was good. So was the rest of the week for the most part. I seem to slowly be crawling out of the dark pit of emotional dysregulation I was in last week. I’m relatively calm considering the fact that my birthday is a trigger for my C-PTSD.

How was your week?

Word of the Week linky